Tuesday, December 10, 2002

they just dropped the bomb. the preliminary results of the bronchial lavage is aspergillus fungus. from the first days of our understanding of FA and bone marrow transplants, the doctors always cited aspergillus as the major cause of death for Fanconi transplant patients. reported attributable mortality from invasive pulmonary aspergillosis has varied, but rates are as high as 95% in recipients of allogeneic bone-marrow transplants .

they are going to get a ct done and if it is localized and not spread, they will operate and remove that part of his lung. you can imagine the risks associated with this kind of major surgery. i have a sense that laurie might want to let him go with dignity and peace and not subject him to this. this will be a most difficult conversation.

please pray or think good thoughts or whatever. i wish it wasn't this. i love my son so much.